Defining the scope of the data you are interested in and how you envision using it will help determine the best data resources to explore. High quality open access datasets exist, but they are not always easily findable and verifiable. Curated and licensed datasets for IUSM affiliates are also available through a variety of platforms, and may require training, a formal request process, or additional fees. Major IUSM-affiliate data resources, along with selected open access data resources, are summarized in this guide.
Indiana Electronic Medical Records
Do you have a research question involving an Indiana patient population? The Regenstrief Institute can broker datasets containing statewide electronic medical record (EMR) information. Submitting a data request for your research proposal begins this process.
Three major Indiana EMR resources are mediated by Regenstrief:
Indiana Network for Patient Careis the data repository of the Indiana Health Information Exchange. It links together longitudinal clinical data from several institutions for over 18 million patients.
A browser-based tool for building dashboards related to social determinants of health data in the central Indiana area. Custom geographic parameters and overlaying selected variable values is possible.