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Indiana University School of Medicine
Ruth Lilly Medical Library

Research Data Services

This guide describes the services offered by the Ruth Lilly Medical Library for the management, sharing, and preservation of research data at the IU School of Medicine.

Finding Data

For a general search across open datasets, you can search by keyword with Google Dataset Search:

 

Google Dataset Search


 

Defining the scope of the data you are interested in and how you envision using it will help determine the best data resources to explore.  High quality open access datasets exist, but they are not always easily findable and verifiable.  Curated and licensed datasets for IUSM affiliates are also available through a variety of platforms, and may require training, a formal request process, or additional fees.  Major IUSM-affiliate data resources, along with selected open access data resources, are summarized in this guide.

Indiana Electronic Medical Records

Do you have a research question involving an Indiana patient population?  The Regenstrief Institute can broker datasets containing statewide electronic medical record (EMR) information.  Submitting a data request for your research proposal begins this process.

Three major Indiana EMR resources are mediated by Regenstrief:

  • Indiana Network for Patient Care is the data repository of the Indiana Health Information Exchange. It links together longitudinal clinical data from several institutions for over 18 million patients.
  • IU Health Enterprise Data Warehouse contains clinical data organized according to IU Health data dictionaries for inpatient and outpatient encounters.
  • Eskenazi Health Data Warehouse houses data from clinical care EMRs in the Eskenazi system.  It is the Eskenazi counterpart to the IU Health Enterprise Data Warehouse.

Indiana Social Determinants of Health

The tools listed here are publicly accessible and can be used in research, assessment, and grant applications.